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Neurodevelopmental condition support and assessments 

A programme of work to manage the increasing waiting lists for ADHD and Autism diagnosis and improve pathways for residents

Demand for autism and ADHD assessments is growing much faster than the NHS can keep up with. This means many people are facing very long waits. This is happening across the whole country, not just in our area. 

Central East ICB is working to make neurodevelopmental services safer, fairer and more consistent for everyone. To do this, we are taking more control over how assessments are delivered, how money is spent, and the quality of care people receive. This includes: 

  • Using clear and consistent rules about who should be seen first, so people are prioritised fairly. 
  • Making sure all providers follow the same standards for pricing, data and quality. 
  • Improving how we track waiting lists, activity and spending, so we can plan better. 
  • Ensuring ADHD shared‑care arrangements are consistent across the whole area. 

For some people, an assessment may not be the most helpful next step. Other types of support may be more effective depending on their needs. At the moment, pathways vary depending on where you live, which can lead to confusion and unequal access. 

Central East ICB is committed to improving all neurodiversity pathways so people get clearer information, better support and a more consistent experience wherever they live. 

This plan will reduce waiting times for those waiting the longest and an increased equity of experience, while temporarily increasing waiting times for those referred in 2026/27. 

We recognise that access to timely ADHD assessment remains a significant challenge and continue to work with providers and system partners to improve pathways, reduce variation and ensure that patients can access appropriate services as quickly as possible, with Neurodiversity a key priority outlined in ‘Our way’ strategy. 

We know that waiting for a long time can be extremely stressful for both the individual seeking a diagnosis, their families and those who support them.  If you are on a waiting list currently, please wait to hear from the relevant provider. You will be informed if there are any changes to your status within the system.  

If you are looking to get an assessment because you are concerned about yourself or someone you care for please do continue to reach out to your GP. 

Waiting lists continue to be long but there is no reason to not seek help if you need it, particularly if you have concerns that are affecting your health, work or day to day life.

Support while waiting for assessments is available in some places across central east. If you have increasing concerns about you or someone you care for then please speak to your GP.  

A formal diagnosis is often not required to access support, however this will depend on the kind of support that may be needed. Support can be provided by professionals, charities and local authorities as well as family and friends.  

Support across the central east area is being collated and will be added to this website in due course. 

If you are finding you are struggling with your mental health please visit the Mind website. In crisis please call NHS 111 or in a life or limb-threatening emergency call 999.